We are looking to speak to persons and caregivers of patients who suffer from different rare medical conditions, such as Acid sphingomyelinase deficiency (ASMD), Fabry disease, Gaucher disease, Pompe disease, Mucopolysaccharidoses 1 (MPS 1) and GM2 Gangliosidosis. If selected for the study, we will invite you to participate in a 2 weeklong online community, where you will be invited to share your experiences and thoughts. Based on these answers, the client will choose a couple of respondents to do the online interview, too. To participate in this important study, please click on the button below.
Ponosni članovi i nosioci:
