Online community + WATI

Rare Disease Patients and Their Caregivers

We are looking to speak to persons and caregivers of patients who suffer from different rare medical conditions, such as Acid sphingomyelinase deficiency (ASMD), Fabry disease, Gaucher disease, Pompe disease, Mucopolysaccharidoses 1 (MPS 1) and GM2 Gangliosidosis. If selected for the study, we will invite you to participate in a 2 weeklong online community, where you will be invited to share your experiences and thoughts. Based on these answers, the client will choose a couple of respondents to do the online interview, too. To participate in this important study, please click on the button below. 

  • Location: UK, Nationwide
  • Date: From 19th June onwards
  • Time: At your own convenience
  • Duration: 2.5 hours over 2 weeks for the online community and 60 minutes for WATI
  • Incentive: 140-200 GBP, depending on the level of the involvement
  • Availability: 7 slots available